A walk with Wade

I’ve had a lot on my mind lately. Some of it good, some of not so much. Some of it real and a lot of it less so. It’s that time again when the wheels fall off a bit but for now I’m just parked safely on the side of a quiet road instead of hurtling down a hill towards a swamp so it’s ok.

It was Wade’s birthday this week. 2 years old! Partly because I wanted to and partly because my annoying brain has been running riot this week, I didn’t plan anything for the day. I did have a party planned for the weekend but with temperatures forecast to be 40C, we cancelled it. Too hot. Too everything… We did a couple of small catch ups with family and friends instead which was nice.

I woke up the morning of his birthday with that strange mix of wanting to do something amazing for our beautiful child and feeling relieved that he is two and won’t know whether I did anything or not.

So I decided to take him for a walk. Not the walk I usually do, which is pop him in the pram and walk up the main road to the local cafe and enjoy myself immensely as I convince myself he is getting the thrill of all thrills playing with the grass on the lawn out the front. No, we went for a proper walk. We live at the bottom of a mountain which is one of the most beautiful places in Melbourne and yet I rarely see enough of it. That day, we drove up to the forest and spent half an hour walking 100 meters. It was beautiful. The eucalyptus trees that form the forest are very tall and very beautiful. Standing underneath them as they leap impossibly high on the slenderest of trunks is spectacular.

Wade started walking a few months ago and is the physical embodiment of the word “toddler”. Continue reading

Frames for baby blue.

There is something magical about Wade’s eyes. From the moment he fixed his eyes onto mine, on the day he was born, I have been drowning in those pools of wisdom. He says more with his eyes than he can with gestures and speech. Without a doubt, I love those crystal blue eyes more than anything so I was very worried when at about 9 months old, I noticed that his eyes weren’t tracking together. It would only happen for a second or two but it was there. Luckily Wade’s uncle and aunt who are both optometrists were staying with us not long after it started happening and recommended that we see an ophthalmologist.

We booked in and the ophthalmologist examined his eyes through this binocular type device and identified that he is very long sighted. She explained that when the eyes look long distance they should be at rest but if you are long sighted, they struggle to focus causing eye strain and fatigue which can cause one eye to drop inwards. This is known as Accommodative Esotropia and is quite common with people with Down Syndrome due to the low muscle tone. Low muscle tone is best described as the muscles having to work harder than normal to achieve the same outcome. Like walking in water or walking uphill. It is not the same as muscle strength. Therefore, if you are long sighted and your eye muscles are straining to focus, they work even harder if you have low tone which causes the weaker eye to give up and eventually it can drop inwards permanently if left untreated. This can mean eye surgery or permanent vision impairment. Continue reading