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21 thoughts on “Contact

  1. Hello Leticia and Mick. I was really proud to read your story, being the mother of a son with Down Syndrome who is nearly 49 years. He has just left the house to go to Hoppers Crossing to visit a friend. Now the Richmond year has finished he fills his time in with the finals and will concentrate on cricket as soon as the footy season is over. He attends a Workshop two days a week, (not his favourite), and three days at the CAE still learning. We have had lots of “moments” in his 48+ years, and still get them, when I least expect. All the best. Margaret

  2. Hello Leticia and Mick,
    I am contacting you with a different perspective. That of an integration aide at a Primary School in Victoria who has had the absolute pleasure of working with two Down Syndrome children on a daily basis for the past 6 years. A girl who is now in Grade 6 and a boy who is now in Grade 5. Their accomplishments are many, their integration into the school community has been embraced by all at our school and they hold an integral position within our school. They are warmly encouraged and accepted by all they meet, such are their personalities, and I can say from personal experience that they have brought more to my life and to that of our whole school community that any of us could bring to theirs. It does require patience and understanding to teach these children but the rewards are so exciting and satisfying to everyone. You will have to always remain your child’s strongest advocate but with the help of your community and DSV your son will always have the best and most valuable support he can ever receive.
    My very best wishes to you both.
    Rhonda Brown

    • Thankyou. The support from professionals such as yourself will help Wade be the best he can be. Thanks for the work you do. I’m sure your work is greatly appreciated by the families you deal with.

  3. Dear Letitia and Mick, Congratulations on a lovely article in today’s magazine. What a wonderful attitude you have and what wonderful adventures await you. Our son, Joe, is 13 years old, has DS and really keeps us on our toes! He is in Year 7, plays soccer in the mainstream competition and will be performing in the school musical early next year. You can watch him waterskiing on Youtube by searching “Joe B is waterskiing”. He has a wicked sense of humour and is very social – loves to be with his mates. He has two sisters, 15 and 9, and has given us so many incredibly special moments. Having Joe wasn’t what we expected but is so much more colourful and rewarding than I could have imagined. It isn’t a bed of roses and sometimes it gets really hard and frustrating but I have friends with kids who are ‘100% perfect’ and cause their parents infinitely more grief than Joe ever causes us. Joe always brings out the best in people – the bigger, hairier and more covered with the tattoos, the more willing they are to give him a ride on their Harley. Have a wonderful time enjoying Wade’s development. He will amaze you on a regular basis. With lots of love, Maree and Anthony

  4. Just thought I would mention, My Downs Syndrome cousin lived until last year aged 70. I recently went on a cruise where a wonderful 45 ish Down Syndrome woman shared our table on several occasions with her mother. What a delight she was. Her conversation was excellent, with a great sense of humour. She participated in everything, including snorkelling, and getting in and out of inflatables. Walked over rough territory with humour. We are the better for having met her and her mum (of 90 odd years). Jan.

  5. hello leticia and mick…. i have a son with down syndrome too and he is now 12years old….. he is the most loving and caring person in the world and i can’t imagine life without him…. he gives me so much joy…. we never had any help from anyone or any organisation it’s just me and my husband… he learned to walk and talk all by himself .. we did not have to go to any therapist… and he is now happy to go to school everyday.. he is very smart that he knows more about all this new technology than me that sometimes i have to ask him about this…i raised him him like a normal kid and never think of him as a child with special need. your boy is so cute and looking at him brings back memory when my son was his age…. wade is very lucky to have you as a parent….

  6. H Leticia, the Herald Sun Sunday “My Story” article was beautiful – so honest and heart felt. I don’t have children with DS but my 17 year old son has a friend at school who has DS and he has integrated successfully as a young adult. How often do 17 year boys olds hug at school? They all hug this kid and he is welcome into every peer group. I asked my son how his friend was going at school and he said – “absolutely everyone loves him.” I also have a friend who has twin DS girls and her story is remarkable. She had no idea that they were DS until they were born. One is blind but her sister is her eyes (and her best friend). Little Wade is such a cutie and I wish your family all the happiness that life can bring. Your blog is fantastic too!

  7. I just read the article inThe Advertiser. Thank you for sharing. I was so moved by your choice and your high regard for life – in its many forms.

  8. There are so many positive, wonderful reports of how children with DS have been accepted into their community,have given joy and are loving and lovable and yet having a son with DS myself and being a single parent with no family nearby to lend a helping hand, it has been a very long and hard road to travel. I love my son dearly and I am very proud of him but we both have paid a price.

    • Thanks for your comment. There are many different stories around yours sounds like it has had some difficult times. I think lots of different stories have their place and should be heard. Thanks for sharing yours. I hope that when the needs are better understood and accepted, then the right support can be found for parents. Some parents needs are greater then others and they should be able to access the help they need without having to justify their child’s place in the world is how see it. It sounds like you have done a great job raising your son.

  9. Hi Leticia… your blog…just discovered it via your guest post on mummaloves website. I too, have a little two year old boy with stars in his eyes and oh how I get the full body hug!! It’s great isn’t it! Nice to discover you and your blog and walk this journey with you! Cheers,
    Claire (and Ewan)

  10. Hello I’m hoping this is okay to do here but I have a little girl who has DS she Is 27 months and just been given glasses with hard frames with lenses that I find arnt suitable for her… Recently I seen a picture of another little girl with glasses that almost like rubber frames with lenses which I think would help my daughter but don’t know where to find them in Adelaide South Australia… My question is do you know where I would find them here please , thank you for reading this
    Kind regards
    Jodie Jonas 🙂

    • Hi there! The frames that I have seen are made of a softer material but the lenses will probably need to be hard so the frame has to support it… I think.
      The softer frames generally have no screws hinges or breakable parts so they are a bit more durable and safer. Lenses can come in a safe shatterproof material.
      This is something I wrote up for someone else as an out line on some of the brands… You could contact companies direct or ask a good optometrist to order in some samples.

      Choosing glasses.
      There are a few different companies that do glasses for young babies and
      children that are all soft plastic or rubber.
      * They have no metal parts, no screws and are generally unbreakable.
      * Designed not to damage the eye sockets etc if they fall on their faces
      which is useful for our kids because they can take a long time to learn to
      walk and can be clumsy with it for longer.
      * good for kids who like to stretch and bend their glasses!
      * usually come with a strap that keeps them on.
      *probably more comfortable than metal frames for wearing and falling asleep
      in the back of the car too!
      *. Can sit very close to the eyes
      * come in a range of colours and shapes

      Brand names…
      Miraflex, Como frames,
      Solo Bambini,
      Tomato frames- adjustable parts to help with sizing and alternate nose pads
      that can set glasses away from face more, but need to be ordered from Korea. (I’ve heard they might be distributing here now!)

      Good luck! I hope you find something suitable.

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