When the wheels fall off…in public…

I met a group of mums not too long ago who all have kids a bit older than Wade. As we were talking, a few mentioned how the feelings of grief that some have after diagnosis can reappear at different times, usually around transition times as our kids move from one stage of development to another, like starting school. On an intellectual level, I felt strange about this. In my mind, I have already dealt with the feelings I had around the time of diagnosis. I know that my fears were mostly misplaced and I am so truly in love with who Wade is. I don’t feel like I have lost anything by having Wade. But the more I thought about it, the more I realised this is exactly what has been happening to me over the past few months.

As Wade is getting older, the developmental gap between him and his peers is getting larger. My logical brain tells me that this is ok. I know he doesn’t need fixing or to be made “normal”. I know his value is the same as everyone else regardless of his achievements but as a parent, the universal feeling of not doing enough is a monkey on my back.

I want full inclusion for Wade. I see it as an important goal and one that is not only possible but worth fighting for. The problem is…as Wade is getting older and becoming more of his own person with his own strengths and weaknesses, I am starting to ask myself whether my desire for him to be included in any and every facet of life, is more about me than about him. Trying to balance the concept of “the more I put into Wade’s development the better off he will be” versus “the more I embrace and nurture him for who he is the better off he will be” has been driving me crazy. Continue reading

Advertisements

A Butcher’s Paper Review

20140507-210338.jpg
Drawing from the full palette of colours this piece is a real paradox. Constrained, yet at the same time uninhibited, the piece speaks of the inner contradiction in us all. The striking use of colour is juxtaposed against the dark inner core that draws the eye symbolically to the edge of the canvas. Limiting the art to the edge of the canvas Wade gives us the experience of what is…and what could be….

20140507-210707.jpg
Each streak of bold hue is intertwined with the next in a haunting representation of the diversity of the human race and the common experience that binds us. The core of the image leaves the viewer asking themselves whether the diversity of colour is exploding forth, drawing inward or doing both at the same time…shifting the paradigm.

Bursting onto the scene seemingly overnight this young artist is one to watch.

20140507-210834.jpg
Untitled (2014)
Texta on butcher’s paper.